Wednesday 6 February 2008

Update



Cleaning bears teeth

Rose "Mother" Makin, she's lovely





Andy Makin on left, So long and good luck with ya chick.


Harris, Col and Immie having a story.
















How did that pic get there twice?





Hello,
I have been told by someone that I always start the blog saying "Sorry it's been a while...".
I am not sorry it's been a while, (no, I am sorry - see, couldn't help myself).

Well Immie Dee is still doin just tickety boo. Still off the oxygen through the day and goes back on at night when she goes to bed. We have just recently stored the concentrator under the stairs and out of the way. We'll keep it in case of emergency. Her oxy flow is very low now, (0.1 litre per min) and a cylinder is sufficient and lasts ages. Gone are the days of being on 0.5 litres 2 years ago and not been able to take time off.

Her feeding is still not too good. The odd nibble here and there which she has a tendancy to store food between her bottom front teeth and her gums. We are going to Alder Hey and Pendlebury to see more feeding specialists in the coming months. We are still feeding her by milk pump during the night into her "Gaz" gastrostomy. For the first time the other day, she took some orange flavoured medicine orally. Generally coz we made a big issue of it been yummy orange flavour.

Her speech is coming on and using bigger and bigger sentences. She was looking at an Argos catalogue and say to Mummy, "I go on the internet". She says some funny things. Sometimes often very adult talk.

Sometimes she has been sent to the naughty corner if she won't do something but it's rare. I'm glad to say she has never fallen into the terrible twos catagory. Can't imagine if we have another, we could be so lucky again!!

We are planning more hols this year. Imogen is fortunate to go on a few trips each year and this year is no exception. March we are off to Hexham house again for the respite care home. We think it will be our last time as she isn't really as deserving as some children and we feel guilty about going this next time, but we have been asked. In April we are going to the lakes with Grandma and Grandad for a few days in a static caravan on a Haven holiday park which should be fun (as along as mother in law behaves). Then June we are going in a cottage to Wexford, Ireland for 10 days. Hope the weather is good, never can tell. I'm sure there will be other trips to our many friends and relatives around the country too.

There are only a few pics this update. We have saved loads of pics on the comp from christmas and stuff during January, but I can't find them. So the pics are all in the last week.

Any ideas on feeding if your child has similar probs please let us know, glad to hear any ideas.

T'ra for now,
Love us lot. xx