Hi,
we've had a number of people telling us they tried to send a message on the blog but found it to be a problem. If you have a problem, you can send an email in the contact section and we will put them on the blog.
Immie Dee is coughing her head off at the mo and having rubbish nights. Hope it doesn't get worse...
TTFN
Baz
Friday 23 February 2007
Tuesday 20 February 2007
Message from June and Abby
Hello guys,
Just wanted to say that you have a beautiful little girl and are telling the wonderful story of her life. Imogen looks really wicked.
I picked up your site from the link from Lauren and Avery's site. I got in touch with Lauren when Avery was born as my daughter was also born with CDH in October 2005. She too like your little one is a survivor and is doing well, luckily the only issue we have with Abigail is her weight, at 16 months she is just under 16 pounds, but apart from that she is doing ok.
Just wanted to wish you all the very best and to say how again how gorgeous Imogen is.
Good luck and lots of love
June and Abby x x x
Baz - Thanks for the kind words June and love to Abby xx
Just wanted to say that you have a beautiful little girl and are telling the wonderful story of her life. Imogen looks really wicked.
I picked up your site from the link from Lauren and Avery's site. I got in touch with Lauren when Avery was born as my daughter was also born with CDH in October 2005. She too like your little one is a survivor and is doing well, luckily the only issue we have with Abigail is her weight, at 16 months she is just under 16 pounds, but apart from that she is doing ok.
Just wanted to wish you all the very best and to say how again how gorgeous Imogen is.
Good luck and lots of love
June and Abby x x x
Baz - Thanks for the kind words June and love to Abby xx
Sunday 18 February 2007
A little angel named Avery
Hi all,
Lindsey found a site about a little angel named Avery who was born in Canada, like Immie with CDH. Avery's mum, Lauren has started this site for the same reasons as us, to bring awareness to diaphragmatic hernia and to offer hope. Avery gave Lauren 17 happy days before being taken away, but Lauren's attitude is amazing, she is a very strong lady. We will be putting a link to her site shortly but you can visit her site at http://laurenziebart.spaces.live.com/. Also as part of the site is links and stories of CDH survivors. This is a site that Linz and I now have in our favourites and are sure to keep a regular update. God bless you Avery XX
Lauren emailed the following:
Dear Barry,
I would be so honoured if you could link Avery's site to yours. Thank you so very much for asking me. I read what Lindsey wrote in Avery's guestbook and immediately visited Imogen's site. She is such a beautiful girl and every survivor I read about fills me with hope that CDH will one day be no more. I read every single word on her site, and it filled me with so many emotions - there was so much familiarity. I wanted to comment, but was unable to find out how, and I want you to know that I am so happy that you wrote. Please feel free to link Avery's website, as my ultimate goal was to share her with the world, and raise awareness of this birth defect that I had never heard of until it touched my life. God bless Imogen and your family. May she continue to thrive.
Love Lauren
Lindsey found a site about a little angel named Avery who was born in Canada, like Immie with CDH. Avery's mum, Lauren has started this site for the same reasons as us, to bring awareness to diaphragmatic hernia and to offer hope. Avery gave Lauren 17 happy days before being taken away, but Lauren's attitude is amazing, she is a very strong lady. We will be putting a link to her site shortly but you can visit her site at http://laurenziebart.spaces.live.com/. Also as part of the site is links and stories of CDH survivors. This is a site that Linz and I now have in our favourites and are sure to keep a regular update. God bless you Avery XX
Lauren emailed the following:
Dear Barry,
I would be so honoured if you could link Avery's site to yours. Thank you so very much for asking me. I read what Lindsey wrote in Avery's guestbook and immediately visited Imogen's site. She is such a beautiful girl and every survivor I read about fills me with hope that CDH will one day be no more. I read every single word on her site, and it filled me with so many emotions - there was so much familiarity. I wanted to comment, but was unable to find out how, and I want you to know that I am so happy that you wrote. Please feel free to link Avery's website, as my ultimate goal was to share her with the world, and raise awareness of this birth defect that I had never heard of until it touched my life. God bless Imogen and your family. May she continue to thrive.
Love Lauren
Saturday 17 February 2007
Date for Gastrostomy is a no go and holiday
Now then, got at date for the op after pestering for some time. Wouldn't you credit it, it's when we're away. We're a bit torn about cancelling the hol or postponing the op again. Unfortunately, we will opt to do the latter. We are going on a 5 day trip to Rainbow House at Hexham in Northumberland. This is a charity run retreat for parents and ill kids. Not that Immie is ill, but classed as high dependancy due to her oxy and feeding pump and they say we qualify. The people there look after parents while we look after Immie. They make your meals, washing and ironing etc. At short notice it's unlikely another couple could take our place hence our reason we are still going. Last time the hospital cancelled our appointment at the 11th hour and there's nowt to suggest they won't do it again. If anyone reads this, leave a post as we haven't had any yet apart from friends or family, (not that we aren't grateful). Be nice to know people are looking at the site. Th th th that's all folks... Baz
Friday 2 February 2007
Bronchiolitis Jab is a nightmare
Immie went for her bronchiolitis jab today and she absolutely hated it. She has it every month throughout the winter months due to her being susceptible to picking these kind of bugs up easily. As soon as we walk into the childrens ward and sees the nurse, she knows whats coming. We take her tights off and WW3 begins.
Two nurses grab a thigh each and inject at the sime time. She shut down and went blue. It was like ... "breathe Immie, breathe" moment. She went a blue grey colour. When it was done she looked at me and I just pointed to the nurses and told her it was nowt to do with me. However, it's alot less bother than getting the virus itself, which would be serious.
No news on the date for the op yet, just that we're somewhere on the list. Hope it's soon.
She is trying tiny amounts of food when she feels like it. Banana the other day and she showed interest in a glass of red wine, but I draw the line. See ya.
Baz
Two nurses grab a thigh each and inject at the sime time. She shut down and went blue. It was like ... "breathe Immie, breathe" moment. She went a blue grey colour. When it was done she looked at me and I just pointed to the nurses and told her it was nowt to do with me. However, it's alot less bother than getting the virus itself, which would be serious.
No news on the date for the op yet, just that we're somewhere on the list. Hope it's soon.
She is trying tiny amounts of food when she feels like it. Banana the other day and she showed interest in a glass of red wine, but I draw the line. See ya.
Baz
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