September Update

We are away on our hols again this time in a static caravan in Wales. Fantastic weather all week even managed a day on the beech and some time paddling in the sea much to Imogens great amusement. There was a caberet at night on the site which Immie loved dancing on the dance floor to sometimes having the dance floor to herself. Some late nights had by all.





Monday 15th August

Immie started play group today. She will go one morning every week. I left her there for an hour which was hard for me but she never even noticed I had gone as she was having too much fun and when I left she was playing with some water with other kids. It was really nice as she is know managing about 8 hours day off her oxygen so she went to the group without it and could run around with the other kids without me following her closely behind. Next week I am planning on leaving her for the full two and half hours, think it will be good for her. I was hoping without me being there she may join in with snack time with the other kids and copy them eating, but she didnt do it the first week. Her eating at the moment is virtually nil and seems scared of putting things in her mouth now as food goes to her mouth but not in. Lots of perserverance and patience will get her there eventually.

August Update

Well its been a while since we updated blog, no excuses just dont know where the year is going!!! We have all be up to lots since last update. had a brilliant day out with good friend Sharron and her daughter Laura who Imogen loves to bits and laughs at everything she does, we went to gullivers world in Warrington which is a fun park for smaller kids. Imogen cried on the first ride she went on but by the third ride couldnt get her off. It was a really good day and well worth the money. Planning on going again in few weeks before it closes for the winter. Have some photos of the day but Baz will need to put them on and he is working.



Towards the end of August Immie told us she had had a poo in her nappy two days running, which was brill as she is happy to sit in it all day long if you havent noticed, so we thought this was huge breakthrough in maybe trying to potty train however it was a one off and she is still happy to sit in it!!!


We have started trying to wean her off oxygen a few hours a day and by end August she is managing about 3 - 4 hours a day off. Thought it would be a long time before she would be able to manage but as with everything she does she has surprised us again.